Teal Pumpkin Project Interview

Teal Pumpkin Project makes Halloween a treat for kids with allergies

LYNDHURST, OH (WOIO) –
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Trick-or-treating is supposed to be fun for kids, but for millions of children, getting candy in their bag can be scary or even deadly. A supportive nationwide campaign is growing to keep kids with food allergies safe.

Super heroes are the costume of choice this year for 3-year-old Sam Glick and his 1-year-old brother, Ryan. But trick-or-treating can be tough because the two siblings have food allergies.

“Halloween is supposed to be something fun and something kids look forward to. A child affected by food allergies, it can be something they dread. They feel very alone,” says their mother, Dr. Abby Glick.

Glick says it can be challenging making sure her sons don’t get into anything that can be potentially deadly.

The pediatric endocrinologist established the Northeast Ohio Food Allergy Network this year. It’s a support group for families affected by food allergies.

The Lyndhurst family is part of the nationwide “Teal Pumpkin Project,” which started a year ago by the Food Allergy Research and Education Organization. The color teal is designated for food allergy awareness.

“It’s a sign that when we go to those doors, they’ll offer treats other than food,” explains Glick.

Treats like bubbles, stickers, glow sticks and crayons.

University Hospital’s Dr. Sam Friedlander is an allergy specialist who reminds people of the potential dangers, especially this time of year.

“Unfortunately, manufacturers change their practices sometimes. So candies and foods that are sometimes safe during the rest of the year, might not be safe during Halloween,” says Friedlander.

“By having the opportunity to go to a house that has a teal pumpkin, that makes their night. And they can get something in their basket that they can keep and be excited about,” says Glick.

Click here for a map of local homes participating in the Teal Pumpkin Project. Click here to download a sign to place outside your front door to show you’re participating.

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Buffalo Wild Wings

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Our family recently had lunch at Buffalo Wild Wings in Avon Lake. Before arriving we checked out the online allergen information which was very detailed. At the restaurant the our waitress made sure to note on our order that we had a member of our party with an egg and tree nut allergy. She offered to show us another copy of the allergen list with the menu and assisted us with ordering. We were very pleased with our visit and found many things on the menu we were comfortable ordering.

-NEOFAN Member

Stress and Anxiety in Families with Food Allergies

Fall 2015 Psychology Event

Families with Food Allergies

Stress and Anxiety in Families with Food Allergies

Amy Przeworski, Ph.D. Assistant Professor at Case Western Reserve University, recently spoke to members of NEOFAN about stress and anxiety in families with food allergies. Some topics she discussed were warning signs of anxiety and ways of coping with stress. She emphasized the importance of considering their developmental level when teaching about allergies and risks.

Some indications of child anxiety may be:

  • Sleeping difficulties (nightmares, sleep walking, insomnia)
  • Worry
  • Physical complaints(stomach aches,headaches)
  • Twirling hair, biting fingernails.
  • Child looking drawn/worn down
  • Repetitive behaviors (checking ingredient lists repeatedly, asking for reassurance that there are no nuts in the food, etc)
  • Avoidance of situations that involve minimal risk

Some Social Impact of Anxiety of the Family may be:

  • Some parents restrict the family’s social activities to prevent accidental exposure
  • More than 30% of parents of children with food allergies make more than one visit per month to their child’s school to discuss their child’s allergy
  • 10% of families in one study home-schooled their child because of their food allergy
  • Those with food allergies have higher absences from school relative to healthy children

To learn more please see Dr. Przeworski’s notes on Stress & Anxiety in Families with Food Allergies.

 

Supporting Allergy Friendly Halloween

At this event the first 20 attendees were given teal paint to use for Halloween in support of the Teal Pumpkin Project.

Families with Food Allergies

 

North East Ohio Food Allergy Network

Cleveland Jewish News Interview

NEOFAN PICTURE

Dr. Abigail Glick’s world changed two years ago when her then 18-month-old son began violently vomiting and lost consciousness after ingesting a cashew crumb. At age 3, her son now faces severe allergies to eggs, milk and tree nuts.

In an effort to fill the void of support for families of children with food allergies in the area, Glick created the newly launched Northeast Ohio Food Allergy Network this spring.

“There was nowhere to turn after my son’s diagnosis,” said Glick, who lives in Lyndhurst and attends The Temple Tifereth-Israel in Beachwood.

The mission of NEOFAN is to minimize the impact of food allergies in families’ lives through support, education, research and advocacy. To form the network, Glick put together an executive committee made up of a pediatric allergist, nutritionist, psychologist, teacher, emergency department nurse, and leaders of community organizations.

“So many families are impacted by food allergies and want a place to go for support,” said Glick.

Fifteen million Americans have food allergies, and one in 13 children have them, sometimes resulting in life-threatening reactions, she explained.

Glick, who specializes in pediatric endocrinology at University Hospitals in Cleveland, said part of her job is to connect families of children diagnosed with diabetes with nutritionists and psychologists, and she wanted to provide the same services for children with food allergies. She also has a 1-year old son with a less severe peanut allergy.

Members of the community have responded positively to the network, said Glick.

“Many of them ask, ‘Where was this 10 years ago when my child was diagnosed?’” she said.

Glick has been meeting with leaders from the Jewish community at Jewish day schools and camps to discuss providing help for children with food allergies in these settings.

“I would love to send my child to a Jewish camp, but right now I have concerns,” she said.

Besides families with food allergies, the network has partnered with local chefs, teachers and Rainbow Babies and Children’s Hospital.

“They’re very supportive and appreciative, because now they have a place to send their patients,” said Glick.

Glick plans to connect newly diagnosed food allergy families with more experienced families through the network. She also aims to bring more science research and clinical trials to the area and roll out education programs that extend to schools, sports venues and restaurants so that places learn to be more accommodating to children with food allergies.

Glick recounted a recent trip to a local amusement park where she experienced difficulty: “We tried to bring in our son’s food, and we were told we had to leave and feed him either before or after we came to the park.”

She’d also like to extend education to local emergency medical services.

“Right now ambulances don’t have to have EpiPens (a medical device that injects epinephrine to treat anaphylaxis) and don’t have to be trained to administer EpiPens,” said Glick.

Glick said though NEOFAN is still in its early stages, she has new families coming her way each day. The network will host its kickoff event, a picnic in the park at Case Western Reserve University Squire Valleevue and Valley Ridge Farms in Hunting Valley, from 5:30 to 8:30 p.m. July 31. Along with arts, crafts and games, NEOFAN will provide attendees with the top eight allergen-free treats, and families are encouraged to bring their favorite picnic foods, with one stipulation – no nuts.

North East Ohio Food Allergy Network Picnic

WHAT: The Northeast Ohio Food Allergy Network’s kickoff event, Family Picnic in the Park

WHERE: Case Western Reserve University Squire Valleevue and Valley Ridge Farms, Shelter #3 (November Meeting Center in case of rain), 37125 Fairmount Blvd., Hunting Valley

WHEN: 5:30 to 8:30 p.m. July 31

Source: http://www.clevelandjewishnews.com/features/health/support-group-forms-for-those-with-food-allergies/article_3a95f68c-2591-11e5-973e-eb8254631f8d.html